Kitatipithitamak Mithwayawin–loosely translated from Cree to ‘hold ownership and control over the health and wellbeing of our own’– is the name of a Digital App Project that has been undertaken in response to the SARS-CoV-2 (COVID-19) pandemic. The development of the project was conducted in partnership with 11 First Nations communities and organisations in Manitoba and Ontario who became the project’s Advisory Council. This project arose from conversations with the Advisory Council which indicated that there is a need for communities to collect and manage their own health data (and data in general) since health data is often restricted, putting communities at risk, especially during a pandemic. The App, originally titled COVID-19 Indigenous and now renamed to Our Data Indigenous, is one of the initiatives that emerged out of the Digital App Project (Kitatipithitamak Mithwayawin) as a solution for communities to collect and manage their own data.
The Our Data Indigenous app has been developed with and for the use of Indigenous communities across Canada who want to collect and own their own data. Although, those from the US and elsewhere will also find the app to be a useful tool.
Yes, the survey uses both qualitative and quantitative types of data. Qualitative data include open-ended responses where participants answer questions using their own words. For example, by responding to questions using video or audio recordings or typing in their own responses. Quantitative data are close-ended questions such as ranked questions where a scale can be applied such as a “1” for strongly disagree or a “5’ for strongly agree.
Every community is unique, so we have made the app reflect that, allowing every community to design their own surveys and questionnaires from scratch. In addition, a number of pre-made surveys and questions are available for use. Communities also have the option to share their questions and surveys with other app users if they wish to. So far, some communities have shared questions on health and wellness, culture, language, and evaluating community programming. All Survey design is done on the Dashboard website rather than on the App. However you choose to design your experience for participants, our team is here to support you.
Surveys can be developed to ask participants about any number of thing, including culture, language, and evaluating community programming, environmental monitoring, housing, etc.
The number of survey participants and who they should be depends on the project. Usually you want an even distribution of age and gender. Although, it is ultimately up to each user who their participants will be.
The Dashboard is a website where users can access the survey results. Users can also use the Dashboard for changing questions and surveys, as well as adding communities, community participants and the participants codes (so they can access the survey on the app). The Dashboard resides on a server and can be accessed through a web browser. It is intended for use by those interested in conducting surveys.
The app, on the other hand, is for survey participants to use on their phone, tablet or computer. Through the app they can enter their unique Participant Code and take the surveys that have been developed for their use.
Each community owns their own data. This project follows the requirements of OCAP Principles of data ownership. This refers to community Ownership over, Control over, Access to and Possession over any data. Similar to the principles of OCAP, one of the main goals of the project is to ensure Indigenous communities have sovereignty over their data that emerges from the surveys on the App. Only those who are developing the surveys in the community will have access to survey their data.
Data for each community is stored in a database within the Dashboard of the app, which is only accessible to those the community has chosen to have access to, as well as our software developer. Our software developer will not look at community data, and will sign a confidentiality agreement if it is desired by the community.
The dashboard provides users with the option of signing in with Google login. This alleviates the need to create additional usernames and passwords specifically for the dashboard, and has added security benefits.
Yes, it is! As a web application, the Dashboard and underlying database implement the protocols of a safe and secure website. This includes connections over HTTPS (i.e. https://www.websiteaddress.example), password protection, and limitations on what user accounts can access certain information. The ‘S’ in “HTTPS” stands for secure which means the website is using a Secure Sockets Layer (SSL) Certificate.
The way the passwords are set up in the Dashboard is that when it is opened, the user will be able to see a list of all of the surveys or “Questionnaires” for all communities. This doesn’t mean they will be able to see the results from the surveys, it only means they will be able to see the questions from other surveys. The reason this is to allow users to use and upload questions from surveys that others have developed. Users will only be able to see their own community under the “Communities” tab and their own community participants under the “Participants” tab. Those using the Dashboard will not be able to see other communities or other community’s participants on the Dashboard, only others surveys. If you don’t want others to see your survey users may choose to keep their survey ”hidden”.
In order for participants to take a survey, a participant code must be created for each user. The codes are generated at the discretion of those using the Dashboard and designing the surveys. Participant codes can be any combination of numbers and letters. The reason participant codes are used is to provide an extra level of security and also to give the surveyor the ability to match survey results with participants.
If you want participants to be anonymous, then you may generate the number of codes for the number of people you want to survey and give the codes to each participant at random.
Yes, we will support anyone who is interested in how to use the app. This would include how to conduct the surveys, how to access the data, and how to analyze and visualize the data. “How to” videos are also available on the website with instructions on how to use the App and Dashboard.